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Thursday, January 3rd, 2013

Subject:moving back to US with a spectrum three-year-old....Where to start?
Posted by:tgrapp.
Time:11:25 am.
Hello everyone,

I don't really know even how to start this post....  I've been living outside of US for the past several years.  My son, who turned 3 in September, has been diagnosed this August.  I am planning right now a move back to Pennsylvania, where I grew up and where my parents and most of my family live.  The main reason is that I want my son to have grandpa and grandma in his everyday life.  They are very warm, loving, and giving people, and they get through to him.  I want my son to get the maximum intervention at this crucial age.

He is now in specialized daycare and also works with an SLP at home twice a week.  There are also some pension and disability money and discounts on specialists.

Where do I start with all that in US?  Are there kinder-gardens that are covered by some government plan?  Are there private kinder-gardens for kids on the spectrum? Is there money allotted and from which agencies?  How are SLP, motor skills and other specialists covered?  Is there a page (or pages)  that has all the relevant links and information that I  should look at?

I will appreciate any comment and any information.

Thank You
Comments: Read 5 orAdd Your Own.

Monday, April 2nd, 2012

Subject:adapting
Posted by:jupiterpurple.
Time:12:04 am.
Cross posted in aspecialparent

My NT son had a choir performance at school, so we were waiting for the program to start. The "crowd" was small and the noise level negligible. My autie was complaining about the noise and saying he hates crowds. Honestly, there wasn't anyone within 10 feet of us. He had been sick, so I can understand that he was on edge. However, we are trying to get him to understand that other people have the right to be places, talk in those places, etc, and that he has to learn to deal with it. When it is not overwhelming, he can force himself to calm down for the sake of his brother's ONE performance. But, since he had been sick, I gave him the option of waiting in the hall for us. He declined.
I told him he has to learn to adapt. He responded, "I can adapt." This sent hubby and I into fits of laughter. We are going to make a shirt for him that reads: I am autistic and I can adapt, as long as EVERYTHING is exactly MY WAY!
Comments: Read 3 orAdd Your Own.

Thursday, March 29th, 2012

Subject:To commit acts of commerce
Posted by:theadydal.
Time:5:14 pm.
Have just sent my aspie teen (age 14) back to the shop to buy a copy of the play he is doing for the Jr Cert(exams at the end of middle school). He tried once already and failed, he couldn't find it on the shelf and didn't ask a staff member.

He really didn't want to go, I really didn't want to have to force him but these days there are not that many things which challenge him in that way and when they happen I have to be cruel to be kind.

He needs to be able to commit acts of commerce with confidence and to be able to ask questions of relative strangers. He should come back with the quest completed and I don't doubt that he will be pissed off with me for the rest of the day, but that's part of the parenting job and I bet if it was going into Gamestop to buy a new Halo game he'd manage it.

The shop is a mere 10 minutes walk and he's comfortable enough going to the shopping centre for other items. He just didn't want to leave the xbox after a full day of school.

Is anyone or has anyone been struggling with this and their teen?
Comments: Read 1 orAdd Your Own.

Tuesday, March 29th, 2011

Subject:"Wandering" petition
Posted by:astrologyisfake.
Time:12:34 am.
Mood:determined.
Introduction: I'm a 20-year-old college student on the autism spectrum. I'm not a parent (yet), but I was a child on the spectrum myself.
My friend alonglongtime is working very hard on stopping "wandering" from becoming a medical diagnosis. Sign the petition here: http://www.change.org/petitions/tell-the-cdc-no-on-abuse-enabling-wandering-code

There is more information about this wandering proposal here: http://www.autisticadvocacy.org/modules/smartsection/item.php?itemid=131

Commentary on this proposal closes April 1st, so act now!
Comments: Read 7 orAdd Your Own.

Wednesday, March 23rd, 2011

Subject:Tastes like victory!
Posted by:theadydal.
Time:12:59 pm.
It’s funny the challenges that come with having a kid on the spectrum but with them also come victories and hope.

Yesterday as I am swamped with this cold, and my co parent was gone out, I made a list of bits for D to go and get for me at the local shop. It’s only 5 mins away and he is 13; but on the list was something he’s not bought before and would be a challenge for him. Due to his ASD (Aspergers Disorder) I do have to push his comfort levels to get him to do things he’s back out of otherwise.

In this case it was to go to the fresh baked bread display and get one of the Vienna rolls he likes so much. Thinking about it made him nervous, he has in his head all the things which can go wrong and people might be looking at him. This sort of stuff is par for the course with him. He came back with out it, but with everything else on the list, so I was happy enough.

The he said ‘Damnit, Mam can I go back over and get the bread? I failed last time and I really like that bread, so I want to go try and get it again’. I was so proud, of him and even if he didn’t come back with it, the fact he pushed himself to go over and even to pass by the people he just passed by on the road and to see the shop assistants again in such a short space of time is a huge step for him. A year ago the idea that people would think it odd to see him going back over the shop or that they would think he failed and so had to go back was too much for him to bear.

So off he went and he came home with the loaf and after two slices settled down to do his homework. I am so pleased and proud, I know it’s just a loaf of bread but the fact he choose to go back over and did it with no fuss or no prompting means a lot to me, makes me more hopeful for him living a fuller life and not being stuck in the same routine all the time.

My Grand Dad used to say, we don’t own our children, we are entrusted with them for a short time and we teach them their first steps and one day they will walk way from us to their own lives.

I pretty much take the fact that I have to prepare and skill up my kids to be able to walk away and start their own lives independent of me as my parenting mission statement. It was before I knew my son was on the autism spectrum, and it hasn’t changed. Yes it means that it’s more complicated, there are slightly more hurdles and certain things are harder on him and us as a family but days like yesterday give me hope and let’s me know I am getting it right, well at least some of the time.

Comments: Read 5 orAdd Your Own.

Tuesday, March 22nd, 2011

Subject:custody
Posted by:jupiterpurple.
Time:9:36 pm.
For those of you who have been following, we got a new caseworker in August. After a year of being told Chance would lose his Disability benefits if he lived with us again (yes, he qualified while living with us, but being returned to us he doesn't? I guess they found the magic cure for autism), our new caseworker told us he doesn't lose his benefits. So, the last 6 months have been spent in preparation for his return to our legal custody. He has been living with us since Dec 3, and court was 14 March. He is now legally ours again. FINALLY!!!

He gets to stay in his school/day treatment, he keeps his after school program 3 days a week, and we get 6 hours respite a week.

If we'd had half of that 3 years ago we could have avoided all this mess. Who's doing the respite, you ask? The same company that does the after school program, did respite for the foster parents, and managed the foster parents. The same company that I asked our old caseworker, "Why can't they do that for families?" and she told me they are only licensed for foster care. Humph!

All I can say is Thank heaven she wanted to go back to school. Maybe she can learn how to do her job better for the next family. In the mean time, YAY!!!

I even got a call from Chance's speech therapist at school telling me how much better he's doing in everything since he came home in December. I wish she would have told the guardian ad litem and the judge. I'm so glad to be away from all the accusations and edicts from people who are supposed to do what's best for my son, but never asked what he's had or what he needed.

I'm also very glad to have my son back in my home, where we love him. He says we don't yell any more than the foster parents did, and we don't call him names. (but they were the icons of parenting)

Ok, amid all the gladness, I'm still pissed off. I'll get over it. And it put us in a position to offer counsel and comfort to our neighbors who are going through something similar, only their son has problems so much more extreme. Our hearts go out to them.

Long post for good news. But, hey. GOOD NEWS!!!

x-posted as usual to aspecialparent and spectrum_parent
Comments: Read 5 orAdd Your Own.

Wednesday, March 16th, 2011

Subject:maturity issues
Posted by:jupiterpurple.
Time:10:12 pm.
I have a question for those with kids on the spectrum:
Did your child hit puberty at an expected age? Or did he/she reach puberty late? If late, how late? Were there any issues other than PDD involved, like glandular issues, weight issues, other hormone deficiencies, or any type of heavy metal toxicity?

Does your child have any issues other than an autism spectrum disorder that might have affected it?

My son is 15 and showing no signs of puberty. Well...I take that back. He gets a stupid grin on his face when he talks about girls, but his NT brother has been doing that since age 8-9. No acne, no facial, pit, or pubic hair, no cracking or deepening voice.

Just looking for feedback, like a poll.

Thanks in advance.


x-posted aspecialparent and spectrum_parent
Comments: Read 7 orAdd Your Own.

Saturday, January 22nd, 2011

Subject:tantrums, rules
Posted by:jupiterpurple.
Time:10:57 pm.
He's 15 and atypical. People don't see an autistic kid. They see a spoiled teenager acting like a toddler. How do I get him to not throw a tantrum when the answer is NO? It's embarrassing as hell. Why can't he just follow the rules? Is it really so difficult for him to stop talking when he's been told to be quiet? Honestly, why is NO the trigger for major tantrums, EVERY SINGLE TIME?
Two Sundays ago he wanted a sucker in the morning before church. We said no. This launched into him gagging and hacking and coughing and spitting because his mouth was dry and water didn't fix it. Without trying it, he knew better than his parents (who have NEVER in their ENTIRE lives had a dry throat) that gum and a cough drop were useless. The only thing that would fix it was a sucker. All through church we got dirty looks and glares from him. We weren't allowed to touch him or talk to him. He'd jerk away from us if we tried to talk to him. Several times he got up and walked out. Later, of course, it wasn't about the sucker. He was just in a bad mood because he didn't feel well. Felt fine after church. Felt fine before church, until we said he couldn't have a sucker.
The week before it was a radio he wanted. He really needed it because none of his other radios work. This was news to me since he'd had the headphones on so loud in the car that my husband and I couldn't hear each other over them. He got rude and nasty with us over the stupid radio. That was Saturday night. We paid for that all through church the next day.
Today, it was over lunch. His brother wanted Subway, and he said ok, until we said he couldn't have chips or a cookie. Then he didn't want a sandwich. The argument ensued. When we told him to stop arguing, he got snotty and flippant. We told him to stop being disrespectful, and the tantrum began, full of sarcasm.
How does one deal with it? Are there any tricks to helping him get it about rules and consequences? When will it click that the consequences are because of his actions?
Comments: Read 3 orAdd Your Own.

Monday, December 6th, 2010

Subject:great story
Posted by:jupiterpurple.
Time:2:03 am.
I saw this link on a cat group and knew I had to share it here. Great story. Reminds me of a cat our autistic son found. Animals are amazing gifts.

http://www.dailymail.co.uk/femail/article-1331474/Boy-trapped-world-refused-smile--stray-cat-changed-life.html
Comments: Read 1 orAdd Your Own.

Sunday, November 21st, 2010

Subject:new caseworker
Posted by:jupiterpurple.
Time:11:47 pm.
So, a bit of back story....my son has atypical autism and frontal lobe damage, and stopped developing emotionally at age 3. He qualified for disability so we could get respite...just a baby sitter for him, more than twice a year. There were no providers available, so we opted for foster care instead of state hospital. (care facilities are not acceptable, for some reason)
The main problem has been, since the day my son was born, the experts don't listen to me and it hurts my son. I said cut me open, he's not coming out. I was told I didn't know what I was talking about. 5 hours later, emergency C-section. The neurologist says that's what made him susceptible to the brain injury, and the birth trauma is why he's autistic.
So, skipping over the flaws in the system, when he qualified for disability so we could get one day of babysitting a month, instead of 2 a year, the only real option was foster care (long story I don't want to go into).

So, after about a year and half, we started asking about getting him back. Our caseworker told us if he comes home, he loses his disability. OR she would say "When he's 18 he'll be in a group home with roommates and it will be so much fun" concluding that there's no point in bringing him home since he'll be 18 in four years. Of course, any time I say the foster parents need training in autistic kids if he's going to stay there, I'm told they don't, but I need to continue parenting classes so I can understand his autism isn't going away.....(I have done more research on autism and frontal lobe injury than the rest of those people combined)

Then, my husband and I get sick of the foster parents not getting autism, us being vilified and made out to be ignorant, and other injustices. We were supposed to have him when they went out of town, or had out of state visitors, but they would never "let" us have him, because he had tantrums when he went back to their house after being with us for a long time. the judge ordered it, but the caseworker always backed up the foster parents. this and other things prompted us to decide, for what we pay in child support, we could afford a babysitter at $20/hr a couple of times a month, and afford one or two after school activities for him.

Then we get a new caseworker. Every time we have to deal with someone new, we have to start over convincing them we're not incompetent, unfit bastards. So I was not looking forward to this. However, things got nasty in court. I told the judge the sate had endangered my son's life a few times and I wanted him home. the judge got snippy with me until I pointed out that my son was getting beaten up at school by a staff member, repeatedly, despite my pleas for them to keep an eye on him with this guy. The judge was incredulous, until I told him the after school aid saw it when he went to get my son, reported it, and the guy took early retirement. The judge had no idea that had happened. He should have been told by the court appointed legal rep for my son. Guess who got in trouble and hasn't been at a team meeting since? Also, the judge turned to the caseworker and told him to get my son home.

Then, I found ot from new caseworker that my son does NOT lose all his benefits if he comes home. We still get about 10 hrs respite/mo (maybe a week) and probably get to keep 3 days of after school program, & even get some overnite respite. That is more in one month than we had in a whole year with family and friends helping. New caseworker say he believes the parents can do a better job than the state can. Far cry from what the other one said.

Court date for a trial home placement is Dec 13th. We will have him 10 days before that while the FP have company (this caseworker told them they have to do what the judge said, and let us have him instead of sending to a respite house).

So, through this nightmare, there is finally a dawn. Who knows....it may not work out. It will be more work than the last 2.5 years have been, but less than the previous 8. And we won't have the frustrations of injustice. Best part so far: my NT son said it will be the best Christmas present he gets this year, getting his brother back. (he knows the plan....autie son doesn't...perseveration thing and all).

I just wanted to share the good news and happy turn after all the frustrations I have posted. A season for miracles, a season that started in September when we got the new caseworker.
Comments: Read 5 orAdd Your Own.

Tuesday, October 26th, 2010

Subject:alternate therapy, cooking lessons
Posted by:jupiterpurple.
Time:10:50 pm.
I need input.

I have mentioned my grand idea for an alternate therapy center for autism. I have written about what my husband and I are doing with our limited resources to put a start to it (teaching Scottish snare drumming, free of charge). And I asked what activities you would like to see available.

A few of you mentioned cooking.
A few years ago my sister gave my son cooking lessons. He loved them! His younger brother wanted them, also (we told him he wasn't old enough yet). She taught him from beginning to end, prep, mix, cook, serve. He learned a lot. While waiting for the food to cook, she would make him play a game with her, like dice, cards, dominoes. He hated that part because with games you have to: 1- take turns; 2- follow rules; 3- don't always win.
But we noticed he does better socially after playing games.(I have gotten similar reports from other people about games & ASD kids).

So I need input, again.
My sister & I are thinking about assembling a cooking lesson program for parents to do with their kids. It would be more of a kit or book, actually. It will have step-by-step instructions on what to teach your kid, from washing hands, recipes, side dishes (or snacks), & a game to play while waiting for the food to cook.

You may be thinking anyone can teach their child to cook, but think about all the planning that goes into teaching your ASD child anything, or how much planning (or past experience) goes into preparing a meal. If you can get your child to help prepare the food, you might be tempted to send them away while it cooks/bakes. Or you might be frustrated trying to find a game they can learn and play. This program would have it all planned. All you have to do is follow it with your kiddo. That takes a lot of the stress out of it for a parent, provides a fun and productive activity to do with your child (better bonding time), and teaches them a life skill.
Also, I know how this works with my son, but I will have someone on the west coast try it, and someone in the south-east test it with her son, so there will be a (slightly) broader test base.

Is this something you'd be interested in for your child/family?

Thanks in advance for the input.
Comments: Read 2 orAdd Your Own.

Friday, October 15th, 2010

Subject:the system
Posted by:jupiterpurple.
Time:1:13 am.
x-posted to aspecialparent and spectrum_parent

Background takes too long. My son, (atypical autism, frontal lobe damage, developmental crisis,) is in special needs foster care. Basically, the only way we could have more than 2 days a year break. The last time we were in court I told the judge we wanted him home. For what we pay in child support we can provide everything he gets now except the particular school. Judge & I argued that until he learned that a staff member had been beating my son up. Then he told the caseworker to do what it takes to get my son home.

He's been in foster care 28 months. For the last 6-10 months, we've been asking about bringing him home again. Every time I mention it to the DCFS caseworker, she would say "When he's 18 he'll be in a group home & have roommates & it will be so much fun!" OR "he'll lose all his benefits if he comes home".
We think that's wrong on many levels: No one told us before he went into custody that he would lose disability benefits if he came home after being in foster care; It costs the state less to provide 20 hrs/mo respite to us than it costs to keep him in foster care; He wasn't getting the intense therapy we wanted for him, being told that he's doing fine, we don't need to add anything that will help him more; If he's getting the therapy he needs, it won't matter if he loses benefits when he comes home...if he hasn't made enough progress that life without respite isn't easier than it was BEFORE foster care, without respite, the state hasn't done their job in treating him (1 of 2 reasons we placed him). Still angry there were no providers & asking why the intercept service (manages foster care) can't provide respite for families if they can provide it for foster parents. Told by DCFS it's licensing & they can only do it for foster parents.

SO, the DCFS caseworker quits to go back to school & we get a new caseworker. New guy says,"you don't lose your benefits. Ask DSPD caseworker, but I think you still get respite". DSPD caseworker says "You still get 10 hours a month, & SSI." (Yay....no $300/mo co-pay for meds!)

So hubby & I start looking for someone in our neighborhood to do respite. The person we thought of can't do it. So we start thinking of other people, but before we can call them, DSPD caseworker calls.

Instead of us finding our own respite & DSPD paying 10 hrs/mo, we can use the intercept service. We will get respite babysitting, & possibly overnight respite, & possibly keep some hours in the after-school program they run. Our DSPD worker wants to get it in place before he comes home in December.

Just thought I'd share the good news. I've shared enough frustrations.
Comments: Read 4 orAdd Your Own.

Wednesday, October 13th, 2010

Subject:therapy, lessons
Posted by:jupiterpurple.
Time:11:41 pm.
x-posted to aspecialparent and spectrum_parent

So I had this grand vision of a place where ASD kids could have lessons & participate in all sorts of things without being mocked or rejected because they're on the spectrum, a place that wouldn't turn them down because the instructor doesn't want or know how to deal with them, a place that wouldn't cost the parents an arm & a leg in addition to "real" therapy & meds & schools & everything else.
Since I couldn't find a philanthropist to fund it, my husband & I decided to start with 1 project. He's a scottish drummer, so we offered drumming. I set up a Facebook page, made fliers, talked to one of the local special-ed schools, I reserved a room at the library, found & purchased practice pads & sticks. I put time & money into it.

The first meeting was tonight. My son was there.

It was not a failure. My son, who has difficulty transferring information from the page to his hands, (can't copy written work... the translation just isn't there) was able to read the music & play it. He started out trying to watch my husband, then play it from memory. But once he was shown how to read the music & play it, he did wonderfully! Afterward, my husband told me he saw Chance's brain working differently than he had seen before.

One kid, one small lesson, one small step forward in learning & training his brain to work better. We will do it again. We will make more fliers & try for a Saturday. If it makes a difference for one kid one time, it's worth doing again. Hopefully there will be more next time. If we help only one kid, it's worth it. If it helps more, it's more worth it.

We did drumming because it's what we can start with. I know only a few on LJ are in my area, but from anyone: What would you want to see offered in your area?
Comments: Read 4 orAdd Your Own.

Tuesday, September 28th, 2010

Subject:Looking for link/books/resources fro dealing with spectrucm teens.
Posted by:theadydal.
Time:12:22 pm.
My son is 12 will be 13 in the new year, he's dx as aspergers disorder.
We got that at 9 and he had sessions in the family and child clinic,
and took part in the intresting years dina school program.
He got an SNA in school but the clinic discharged him and the family from their roster and support
a month before he changed school from primary to secondary (jr high).

He has a shared SNA now but it's not a month into the new school year,
which is new school, surroundings, class mates, teachers changing all the time,
new school uniform which he hates, so it's a lot of change.
The school work is easy for him but he's starting to isolate himself a lot.

But with the stretch in height he took over the summer as come a new temper.
I know it's him becoming a teen and it's testosterone but he is just lashing
out constantly, mostly verbal and roaring the house down.
Esp first thing in the morning which end in his younger sister crying before breakfast.
He is brutal and utterly self centred, and is back to slamming himself into the walls.

So I am looking for any links, books, resources, hints or ways to cope with him and
get him to cope with himself, as this is only the start of it, and after this
mornings explosion something has to change and soon.
Comments: Read 3 orAdd Your Own.

Thursday, September 2nd, 2010

Subject:autism, therapy, alternate therapy
Posted by:jupiterpurple.
Time:10:52 am.
x-posted, some of you will see it twice or thrice.

Some time ago I asked for input on activities that your ASD kids enjoy that have helped then in some way. Something that gave your child a real-worked benefit that isn't considered therapy. I'm doing research for, and applying for a grant, to start a therapy center that offers what I call alternate therapy.
Some ideas included music, swimming, crafts, sports skills, cooking. Some suggestions were more specific, I'm just giving generals for reference.

Here's the update. I have started a grant application on Pepsi Refresh Everything. (it is murder to get it submitted before the slots are filled...tried twice and missed). I suggest everyone go there and vote for things you feel will help whatever cause you support.

In addition, I decided not to wait for help that may or may not come, and start myself on a small scale. My drummer husband agreed to teach basic drumming as a first project. The benefits of this are numerous and we are excited to start. We are doing research on inexpensive practice pads and sticks, and have decided on the second Tuesday of the month. We should be able to get a conference room at the library. Now all we need is kids with a parent in attendance and we can start. The only cost to participants is the cost of the equipment....should be less than $20 each kid. No licensing needed as we are offering to hare our knowledge at no cost to parents who want to help their kids learn.

I have a facebook page for this if you want to follow the updates. Center for Alternate Autism Therapy. Also, if you know anyone in the Salt Lake area who might be interested, you can refer them to our page.

My ultimate dream is a large center offering many things, including aids so the parents can have a break if they desire one. If this was nationwide, even better. Perhaps others have talents/skills they can share in their communities?

Thanks for reading.
Comments: Add Your Own.

Friday, August 13th, 2010

Subject:T-shirts, slogans
Posted by:jupiterpurple.
Time:11:34 pm.
x-posted to aspecialparent

We are preparing for the NAMI walk this fall and are looking for suggestions for sayings to put on T-shirts. We have thought of a few, and heard/seen some other sayings.

Here are some of what we thought of, but we are open to suggestions.

*My kid's autistic. What's YOUR problem?

*It's not a diagnosis, it's a child.

*Correct my son's autism before you correct my parenting.

*Autsim: it's not just a diagnosis, it's an adventure.

*I'm not stupid. I'm autistic.


I need input! Thanks in advance.
Comments: Read 5 orAdd Your Own.

Monday, July 19th, 2010

Subject:advice from people who mean well.
Posted by:jupiterpurple.
Time:11:45 pm.
x-posted in aspecialparent and spectrum_parent

We had a rough weekend with Chance. Riley got the last rib for lunch, and Chance was stuck with stir-fry (I went without lunch so he and Dad could have the stir-fry). So ten minutes later, he's telling us it tastes bad, and it's making him sick. He's going to puke if he has to eat it. Since it's half gone, and I know his modus operandi, I tell him to eat that or go hungry. The argument ensues. It got pretty nasty. He went hungry and was, of course, in tears 30 minutes later because he was starving.
I'm sure you all know the drill. "I didn't get what I wanted, or someone else got something better, so the world is coming to an end and Mom and Dad will give me exactly what I want, or gp through hell until I find something else to fixate on, usually by tomorrow."
We stood our ground because I don't want to spend the rest of my life fixing him three lunches until he decides to eat one of them, and two dinners, and four breakfasts, etc.
So, today I was telling my sisters about the rough weekend, and they tell me how to handle it. Chance is 14. I have been dealing with his autism and brain injury for 11 years (the onset of each was age 3). All the methods that work for NT kids don't work for Chance. If you try them, you usually end up with a worse mess than what you started with. I've told them this before. They've seen it. They've lost it with him. They use all the "magic" methods for raising NT kids that don't even exist in the world of autism, and given up, or become angry with him, etc.
So, they tell me all these things to do and say. All I could say was "have you MET my son, Chance?"
I know my sisters were trying to help, and I know they love me. AND, they are not as bad as my in-laws who think I'm too strict, or know nothing about children (I won't go into HOW wrong they are on THIS), but HONESTLY! I didn't say it because I didn't want to be rude when they're trying to help. But seriously: if you don't have an autistic kid, don't tell me how to raise mine. You want to help? Take him for a day. Help me with Riley, but don't talk to me about dealing with Chance like I'm stupid. Before we placed him special needs care, LJ was the only real support I got with this. Now the foster parents have babysitters for him if they want to go to the bathroom, and THEY handle him worse than I do. My sisters know that, too.

I guess I'm just venting. Anyone else have anything similar so I don't feel isolated?

Thanks.
Comments: Read 8 orAdd Your Own.

Friday, July 16th, 2010

Subject:alternate therapy
Posted by:jupiterpurple.
Time:10:54 am.
Some time ago I asked for input and stories of things that have helped your autistic kids. Things that are not traditional therapies.
My own son had guitar lessons, cooking lessons, and was "forced" to play board games. All of which were beneficial. Well, I was asking for other examples because I want to start an alternate therapy center for kids with autism and want a large base of activities from which to draw.
I spoke to my sister the other day, who taught my son cooking, and she said she would teach cooking or other crafts if I could open a center. We got some good ideas put together, and today I started my application for a grant.
I am still interested in any stories or activities that have helped ASD kids.

Just an FYI
Comments: Read 2 orAdd Your Own.

Saturday, June 26th, 2010

Subject:So...
Posted by:hopefuldark.
Time:1:37 pm.
Ive started a blog to keep track of my kids, and my, issues with FAS, Aspergers, and AUtism.
It can be found here... http://creatorschildsoap.blogspot.com/

I guess Im trying to document the activities, as best I can, trying to see how they grow and change. Its not a place for me to vent, but more a place for me just to log what happens, and see how things change and what triggers there are in our lives.

If you are wondering, I am an ASpie with some FAS issues(undiagnosed until recently)35 years old
my son is FAS with some Autistic traits (starting diagnoses procedures)2 years old
and my daughter is diagnosed Autistic, with possible FAS issues. 3 years old.

If anybody is interested in following this attempt, it may encourage me to continue it.
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Thursday, June 24th, 2010

Subject:therapies
Posted by:jupiterpurple.
Time:11:04 pm.
I am cross posting this, so some of you might see it twice.

My son has atyipical autism. He fits well into HFA groups, but doesn't function well enough on hsi own to go fit well with an aspie group.
It's complicated with the addition of frontal lobe damage (no impulse control) and a PTSD-type disorder.

That said, I have noticed there are certain things which help him with his social interactions, and with his thought processes (he doesn't process like other people, even on the spectrum). I was wondering if any of you have noticed specific activities that help your kids, that the OTs and others don't use, or recognize.

Here are some things that help my son:
cooking lessons
guitar lessons
playing a board game
thinking games, like Izzy
building models

I am trying to gather information for a project. It will most likely be long-term, so if you think of something later, I'd still like to hear about it.

I already know what helps my son, and have a good idea of what else might help him. I want to know what other people have found to help their kids. I help a bit at my son's school, and I want to find unconventional things that can help the other kids. Eventually, I would like to find a way to start a spectrum therapy center. My son is in an after school program now that ammounts to babysitting, and the people in charge refuse to do things that will help my son. These kids need more help than is out there. But that help is possible.

Stories and examples of success and improvement are more than welcome.

Thanks.
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